Public involvement

We believe that public and patient involvement (PPI) in the design and conduct of trials and studies improves the quality of the research that we undertake. The value of the patient perspective and experience is integral to any research activity that affects patients. PPI gives the patients and members of the public the opportunity to have their say in the way our studies are conducted and help suggest important changes to benefit future and on-going research.

There are lots of ways you can get involved in our research, including joining one of our trial steering groups as a patient representative, joining in discussions on new research ideas, helping design study questionnaires and reviewing patient information sheets.

We are interested in hearing from you, whether you are a patient affected by bowel cancer, or are caring for someone with bowel cancer. If you have any suggestions or comments, or want to be a patient representative for our research please contact us.

For researchers

Data used in CSPRG research was collected subject to the informed consent of the participants and / or under section 251 support. Access to the individual level anonymised data will only be granted in line with the relevant informed consent form or section 251 support, subject to approval by the appropriate research ethics committee, Health Research Authority (HRA) and HRA Confidentiality Advisory Group (HRA-CAG) as required, under a formal data sharing agreement.

To discuss a request for data please contact the CSPRG (see Contact us) providing the following information: the proposed study objectives, the data you require and timelines for completion of the research.