24 Sep

What type of information does the CSPRG hold for the purposes of the SOCCER study?

The CSPRG only holds personal information (such as name, full date of birth, NHS number) for the SOCCER patients if they were randomised on the SIGGAR study and the patient did not subsequently withdraw their consent.  We do not hold any identifiable data for the remaining patients in the SOCCER cohort.

Additionally, all the data held on the SOCCER database is de-identified and we hold:

  • clinical data including data on bowel symptoms, examinations;
  • cancer and mortality data from NHS Digital

We completed data collection in November 2015. The patient data page provides further details on what information we hold for the purposes of our research, and how we use and protect this information.